Celine Dion’s battle with stiff person syndrome is shedding light on the rare condition.
In December 2022, the singer revealed her diagnosis while also announcing the postponement of her 2023 shows.
In a video on Instagram from 2022, Celine Dion shared, “I’ve been struggling with health issues for a long time and it has been a difficult journey for me.”
The documentary “I Am: Celine Dion”, released on Tuesday, provides insights into her experience with the diagnosis.
Dr. Richard Nash, a physician at the Colorado Blood Cancer Institute, stated, “It has brought attention to this particular disease.” He has conducted research on autoimmune conditions like stiff person syndrome.
“Currently, the treatments for this syndrome are not very effective, and the disease typically progresses,” he explained.
Stiff person syndrome, also known as SPS, is a rare autoimmune neurological disorder that manifests differently in each individual. It can result in muscle stiffness and painful spasms, triggered by stress or temperature changes.
According to the Cleveland Clinic, only about 1 in 1 million people are diagnosed with this condition.
Celine Dion’s openness about her diagnosis has also increased awareness of the ongoing research on this incurable disorder.
“In some cases, celebrities or well-known figures can spotlight a disease or organization, bringing more attention to the research initiatives,” noted Dr. Nash.
Dr. Nash is actively involved in studies investigating treatments for stiff person syndrome.
“We are exploring the potential benefits and risks of treatments, such as stem cell transplants for patients with autoimmune disorders,” he shared.
One study, published in January, showed clinical improvements in stiffness and walking ability in patients with SPS after receiving a stem cell transplant.
@scrippsnews Celine Dion’s new documentary explores her journey with stiff person syndrome. While there is no cure, it has raised awareness for potential treatments.
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♬ original sound – Scripps News
